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- Every family faces loss through natural attrition
- of age and through accidents.
- Some families also face loss through genetic diseases such as Cystic Fibrosis (CF). My aunt and uncle, Jill and Des, discovered they were carriers. One in 25 people carry the gene. If they marry, there is a 1 in 4 chance their child will have CF. We hope for a cure.
- A Message from Jill to everyone thinking of having children.
- Elmira's Story by Adrian McGregor
- (Warning, sad but up-lifting.Thanks to Adrian Mcgregor for permission to use this article)
Michelle lived 3 days. She was born in 1972. We didn't know CF caused her death.
Elmira was born in 1975. She was 5 months before she was diagnosed. She was cheeky and very bright. She died at 5 years.
Rhelma was born in 1983. She was artistic and played the harp. She died at 16.
There was a 75% chance Rhelma would be healthy.
Jill and Des have a healthy son who was born in 1973. He is a carrier but his wife isn't.
